Wednesday, June 09, 2010

biopsy: negative?!

Can it be true?

R had her biopsy almost a month ago. I took her to the hospital and waited while they wheeled her off to the endoscopy room to be heavily sedated and have a probe go down her throat. She was most worried about the gag reflex. I was most worried about watching the I.V. inserted.

Once they wheeled her off, the whole thing probably took less than 20 minutes before she was back. She was pretty groggy, but not groggy enough to get much of the sleep the nurses recommended. For the next 24 hours she was legally impaired, and then the waiting started.

They said that the results would be available in 7-10 days. They didn't say that the nurse was going on vacation for another 7-10 days after that, and no one else could disclose the results. The outgoing message on the answering machine was adamant that we should not call back or leave a second message. You know, "Don't call us, we'll call you."

Finally, this week the verdict came. Negative. No sign of Celiac Disease.

What?!

Eight months ago, when R was still pregnant, the Celiac blood test came back positive. That test is considered 95 percent accurate, so it's all a bit perplexing.

R says it's all because pregnancy does crazy things. She has a friend who says she was allergic to apples until her first pregnancy, when she suddenly wanted nothing else. Similar stories, but the other way round.

We will hear the opinion of the specialist soon, but we may find we can eat gluten again -- at least, until another pregnancy comes along to defy science once again.

How do you like them apples?

6 comments:

Jennie n Jeff said...

We will have to have you over for some gluten!

Unknown said...

This is great news! Has R tried any glutenous food yet? How did she feel?

D said...

She ate gluten for 4 weeks leading up to the biopsy with no obvious symptoms. She went back off gluten following the exam, but she hasn't been too worried about contamination or anything until we could get a final diagnosis.

Kage said...

Yeah...I tested positive for some unmentionable diseases while I was nursing...I consulted someone on that and he explained that cells shape change because of hormones and labs will sometimes make hasty judgments based on shapes. I retested post-nursing and was negative.... I also GAINED allergies to apples and peaches after my first pregnancy and peanuts after my second...and sadly those allergies REMAIN. ugh.

Glad gluten is back in your life...

Lisa and Doug said...

Great news!

TALON said...

Glad to hear that ya'll can eat gluten again. My daughter has Celiac Disease in addition to Type 1 Diabetes (she turns 12 later this month) She was diagnosed with the diabetes when she was 4 and Celiac about 3-4 years ago. Both totally life changing, but we've all adjusted well I think. Anyway, congrats and take care.